{"id":5140,"date":"2021-07-04T13:03:13","date_gmt":"2021-07-04T12:03:13","guid":{"rendered":"https:\/\/sigbi.org\/milton-keynes\/?p=5140"},"modified":"2021-07-04T13:10:17","modified_gmt":"2021-07-04T12:10:17","slug":"celebrating-invisible-women-june","status":"publish","type":"post","link":"https:\/\/sigbi.org\/milton-keynes\/2021\/07\/04\/celebrating-invisible-women-june\/","title":{"rendered":"Celebrating Invisible Women – June"},"content":{"rendered":"

\"Aaliyha<\/a><\/p>\n

Hi my name is Aaliyah, I\u2019m in my second year of my health and social care diploma at college.\u00a0 I plan to attend university and study Psychology.<\/p>\n

I was diagnosed with Dilated Cardiomyopathy in July 2015 when I was 12 years old.\u00a0 I was also often short of breath and experienced palpitations regularly.\u00a0 I was taken into hospital where the medical professionals discovered that I was in multiple organ failure and my heart function was below 15%.<\/p>\n

Although my diagnosis came as a huge shock for me and my family, I feel it has made me the strong and resilient person I am today. I am now at 23% heart function and working well with my cardiologist to manage my condition with medication and my S-ICD (Subcutaneous Implantable Defibrillator).\u00a0 The following link contains more information about Dilated Cardiomyopathy, click here<\/a><\/p>\n

I have always been creative and have found art really helps me manage my condition, physically, mentally and emotionally.\u00a0 I particularly enjoy crochet, art journaling and sewing.\u00a0 In 2017 I was able to share an exhibition of my creations as part of a local art collective, which helped me build confidence in my art.\u00a0 Cooking is another outlet for my creativity, which allows me to make meals for my family and socialise.\u00a0 It is also beneficial when managing my diet to maintain and support my treatment plan.<\/p>\n

\"Aaliyha<\/a><\/p>\n

My experience has allowed me opportunities to help a variety of people. \u00a0I use my skills and support network to advocate for groups who are underrepresented and often unheard, in particular Invisible Disability, Mental Health and LGBTQ+. \u00a0Through my peer support volunteering, I have met other young people with similar experiences and built some very close friendships and connections.\u00a0 Promoting disability awareness through modelling opportunities for my local hospice and my college.<\/p>\n

As a member of Cardiomyopathy UK\u2019s youth panel; I have spoken at public events about my experiences and managed several fundraising events over the last few years.\u00a0 I provide peer support as a volunteer, where I support other young people through diagnosis, procedures and treatments for Cardiomyopathy. For more information on the youth panel click here<\/a>.<\/p>\n

 <\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

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